About 15 million people in England have a long-term condition. Long-term conditions or chronic diseases are conditions for which there is currently no cure, and which are managed with drugs and other treatment, for example: diabetes, chronic obstructive pulmonary disease, arthritis and hypertension.
People with long-term conditions now account for about 50 per cent of all GP appointments, 64 per cent of all outpatient appointments and over 70 per cent of all inpatient bed days.
Getting the Right Treatment and Care
For information about getting the right care, the first time, please visit the City of York Council website.
For information about Health and treatments, there is an A–Z list available at the NHS Choices website.
For support after hospital or for intermediate care see Age UK
York Integrated Care Team
The York Integrated Care Team (YICT) has been developed in partnership with local stakeholders to support ten GP practices based in the City of York. The YICT helps keep people out of hospital and independent for longer by working directly with each individual to see if appropriate alternative solutions can be found. It offers continuous review and support which ensures that patients are optimised to stay at home. The team is made up of GPs, Nurses, Social Workers, Occupational Therapists, Paramedics, Carers and Care Coordinators. Referral to the team must come from a qualified health care professional such as a GP. Furthermore patients must be aged over eighteen years old and attend one of the following GP practices: Priory Medical Group, York Medical Group, Haxby Group, Old School Medical, Front Street, Dalton Terrace, Unity Health, Myhealth, East Parade or Jorvik Gillygate.
York Integrated Care Team,
Tang Hall Lane Surgery,
190 Tang Hall Lane,
Long Term Conditions
Healthwatch York has produced a Dementia Guide with information about what’s out there for people with dementia. This guide provides information and advice to help people:
- Find out more about dementia
- Find organisations that can provide advice, help, support and social activities.
- Hear about how York is becoming more dementia friendly.
NHS Choices provides information about dementia and why it is important to get a diagnosis as well as:
- Dementia Forward support people in the Ripon and Harrogate district, York and The Vale.
They provide a number of services and different avenues of support and information to anyone who is interested in dementia, whether they have received a diagnosis, have concerns about their memory, support someone with memory problems, work in dementia care or just want to know more!
- They have a helpline, which operates from Monday- Friday 9am-4pm. Dementia Support Advisors are also available for telephone consultations.
Helpline: 03300 578592 (Monday-Friday 9am-4pm inclusive)
- Email: firstname.lastname@example.org
Dementia Yorkshire is primarily focused on reducing isolation and providing a fun, safe environment for people to socialise. Each session is based around a theme, such as the 1960's, 1970's, A day at the Seaside or Sports Day to name a few.
- Alzheimer’s Society provides information and advice as well as funds research. They provide a National Dementia Helpline: 0300 222 1122 and have a number of local activities.
- Age UK York - a range of support, advice and information for older people in York. Tel: 01904 627995
City of York Council website details how York is working towards becoming a Dementia Friendly City
York Dementia Action Alliance aims to raise awareness, tackle stigma and become a hub for communication and improvements
Healthwatch York Mental Health Directory contains further information about activities in the city that support dementia.
York Minds & Voices are part of the national Dementia Voices (DEEP) network. DEEP have produced this Knowledge is Power booklet.
The Alzheimer's Association is a voluntary health organization in Alzheimer's care, support and research. Their mission is to eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health.
Other useful websites include Dementia UK and Dementia and the Herbert Protocol
For local Alzheimer’s groups, cafes, activitie or ones for older people then please check our community activities directory.
Prevention and National Cancer Screening Programmes
A cervical screening test (previously known as a smear test) is a method of detecting abnormal cells on the cervix. The cervix is the entrance to the womb from the vagina. Detecting and removing abnormal cervical cells can prevent cervical cancer.
Cervical screening is offered to women aged 25 to 64 in England because of the benefits of screening, including finding abnormal cells early so they can be treated quickly. Women who are registered with a GP are automatically invited for cervical screening.
This includes women who have had the HPV vaccination, as the vaccine doesn't protect against all types of HPV linked to cervical cancer so it doesn't guarantee complete protection against cervical cancer.
Deciding whether or not to have a screening test is your choice. To help you decide, you can also read the NHS Cervical Screening leaflet (PDF, 453kb).
Bowel Cancer Screening.
Bowel cancer is a common type of cancer in both men and women. About 1 in 20 people will get it during their lifetime.
Screening can help detect bowel cancer at an early stage, when it's easier to treat. It can also be used to help check for and remove small growths in the bowel called polyps which can turn into cancer over time. All men and women aged 60 to 74 who are registered with a GP in England are automatically sent a bowel cancer screening kit every 2 years.
Make sure your GP has the correct address so your kit is posted to the right place.
If you're 75 or over, you can ask for a kit every 2 years by phoning the free bowel cancer screening helpline on 0800 707 60 60.
Breast Cancer Screening.
About 1 in 8 women in the UK are diagnosed with breast cancer during their lifetime. If it's detected early, treatment is more successful and there's a good chance of recovery.
Breast screening aims to find breast cancers early. It uses an X-ray test called a mammogram that can spot cancers when they're too small to see or feel.
As the likelihood of getting breast cancer increases with age, all women aged 50 to 70 and registered with a GP are automatically invited for breast cancer screening every 3 years.
Cancer support organisations
Sometimes a diagnosis of lung cancer can make you feel alone and afraid. Getting to know other people who have similar experiences can be helpful. One of the ways the Roy Castle Lung Cancer Foundation do this is by running support groups for people with lung cancer.
At Macmillan, they know how a cancer diagnosis can affect everything. So they will help you find your best way through. From advice about money and work, to someone who’ll listen if you just want to talk, we’re here when you need us most. There are a range of practical help and support groups in and around York.
Cancer Research UK carry out a number of roles including funding scientists, doctors and nurses to help beet cancer sooner and provide information to the public.
York Against Cancer is a local charity helping local people affected by cancer. They provide care and support for patients and their families in York and North Yorkshire, fund pioneering cancer research and provide cancer awareness education and information.
York Breast Friends has an aim to provide a safe, supportive environment in which people feel supported, throughout their cancer diagnosis and treatment and beyond. With the support of the Breast Care Nurses and a variety of breast cancer charities, meetings are determined by the needs of the women currently attending the group.
The Humber, Coast and Vale Cancer Alliance brings together all the organisations that commission and provide cancer services in the Humber, Coast and Vale area, enabling effective and co-ordinated partnership working to improve patient experience. Here's the Alliance's list of support groups.
Humber, Coast and Vale Cancer Alliance, have also launched free online 'Cancer Champion' sessions to help raise awareness of the signs and symptoms of cancer to encourage early detection.
The York Stroke Association offers information, advice and guidance for stroke survivors and carers
For a local contact as well as My Stroke Guide – York then please use the link provided.
Speakability Self-Help Groups are run in York by and for people with Aphasia - language-loss following stroke, head injury or other neurological condition
Parkinson’s UK has around 365 local groups across the UK. For details of the York group visit the Parkinson’s UK website
Diabetes UK has a range of support, advice and guidance about the different types of diabetes. For more information visit the Diabetes UK – York group website.
York Teaching NHS Foundation Trust Hospital also provides useful information regarding the diabetes services in our area, latest news and events and links to useful resources including their unique patient forum. This site is intended to compliment information provided directly by the diabetes teams and is for use by both patients and healthcare professionals. The diabetes staff at York Hospital and the Vale of York Clinical Commissioning Group (CCG) have collaborated to produce this new website, which will be developed and updated regularly - please visit often!
The British Heart Foundation aims to win the fight against cardiovascular disease with a vision of a world in which people do not die prematurely or suffer from cardiovascular disease. Further information is available from the British Heart Foundation website
York Coronary Support Group Trust provides support as well as exercise classes, to cardiac patients and their families following the patient’s illness and release from hospital.
British Lung Foundation has been researching lung conditions for 30 years, help people affected by lung conditions and campaigns for positive change in the UK’s lung health. They offer a Breathe Easy York Support Group on a monthly basis.
Sometimes a diagnosis of lung cancer can make you feel alone and afraid. Getting to know other people who have similar experiences can be helpful. One of the ways Roy Castle Lung Cancer Foundation try and do this is by running support groups for people with lung cancer. Including a group in York.
Motor Neurone Disease (MND)
Motor Neurone Disease (MND) describes a group of diseases that affect the nerves (motor neurones) in the brain and spinal cord that tell your muscles what to do. With MND, the messages from the motor neurones gradually stop reaching the muscles, which can lead to weakening, stiffness and wasting away.
The condition currently affects 5,000 adults in the UK. As this is not a common disease, general healthcare professionals may not see many cases with MND. It is therefore important to seek out specialised care who have the appropriate level of experience in the treatment of MND.
MND is life shortening and there is no cure but symptoms can be managed to ensure a good quality of life.
Further information can be found on The Motor Neurone Disease Asssociation website.
Multiple Sclerosis (MS)
The MS Society has a York branch that offers information, advice about Multiple Sclerosis (MS). For further information visit the MS Society York branch website. They also provide Cafe Neuro York which is group for anyone with a neurological condition, people with and affected by Parkinson’s Disease, MS, Huntington’s and Acquired Brain Injury, or someone who knows someone who does. This is currently suspended due to the Covid 19 pandemic.
Arthritis Care provides support and services for people with arthritis in England. They provide them, their families and friends with support, understanding, information and expertise so that they can cope with the impact of the condition and get the most out of life. There is not a branch in York however there are branches in Harrogate and Leeds.
York Rheumatoid Arthritis Support Group aims to provide support and information to Rheumatoid Arthritis sufferers and their carers in York and the surrounding area. Interested professionals are also welcome.
They meet on the second Saturday of each month (except for January), 2pm-4pm, at the Priory Street Centre, 15 Priory St. (off Micklegate), York. The centre is fully accessible and there are a few parking spaces.
NB: Please note that these meetings have been suspended until the Covid 19 situation improves.
For further information, please contact Susan Blore:
Phone: 01904 642227
An Acquired Brain Injury (ABI) is an injury caused to the brain since birth. There are many causes to sustaining an ABI including falls, traffic accidents, tumours, infections and stroke.
Headway, is a national charity that supports people who have been affected by a brain injury. They provide support with the practical issues of living with brain injury (which can include legal advice, benefits and employment) and emotional issues such as behaviour.
Headway York can provide assistance with family and carer support, information, and holidays and outings. More information including contact details can be found on the Headway York page here.
ME in York
Myalgic Encephalomyelitis (ME) was recognised as a neurological disorder by the World Health Organisation (section G 93.3 of ICD10) in 1969.
It can affect the cognitive function, mobility, speech, concentration and things such as light and sound can be extremely debilitating. It causes a broken energy production system and has a huge effect on our immune system. The nature of the illness is that there are many symptoms and those dealing with it can have any mix and level of symptoms making it difficult to diagnose.
This illness affects many people across the world. Estimates are 250,000 in the UK and there are likely to be around 800 people in the York area alone with ME, some 200 of them being severe, which means house or bed bound. Many of those bed-bound can only feed through tubes, and have little hope of improvement. This includes children as young as two years old, and spans all ages.
These could be the friends you haven’t seen for a while, your work colleagues, the guy who used to be there every week for football, the neighbour you haven’t seen walk down the street for some time. This is a real illness affecting real people in your community.
The York ME Community is a Support Group reaching out to let people know that there is support in the York area. This is for those with ME, their friends, family or just for those who wish to learn more.
We would also like businesses to get in touch.
HIV treatment is highly effective in improving the quality of life of people living with HIV. Now, with U=U (undetectable = untransmittable), treatment is also an effective way of preventing passing on HIV to partners.
Living with HIV isn't always easy, therefore YorSexualHealth (YSH) runs a free and confidential support service for people living with HIV and their partners and carers in York and North Yorkshire.
Telephone: 01904 721111
Last reviewed: 19/08/2020